“Parkinson’s disease is a bit excluded from our system. We are not treated like cancer and heart patients who need multidisciplinary treatment. Unfortunately, only a small proportion of patients have access to it,” Pavlina Likar Trepetlika Cvetka, president of the association, warned in a press conference today.
The association, which brings together more than 1,200 people with Parkinson’s disease and other extrapiridal pyramids, and their caregivers, has been attracting attention for 30 years. The Institute of Health Insurance (ZZZS) has been asking for rehabilitation recognition every year for ten years, including the Ministry of Health, but has so far received no response. In the meantime, restorative rehabilitation should be legalized for all people with disabilities in the Health Care Act. “In June the National Council proposed amendments to the law, but the government deemed the proposal inappropriate and we are now awaiting the decision of the National Assembly,” Likar said.
Neurologist Dušan Flisar of the Medical Center of the University of Ljubljana (UKC) has stated that patients with the disease in the park still do not have comprehensive treatment. “Rehabilitation programs are being conducted in both spas, but to some extent, they are not available to all patients, and most importantly they are not formalized,” he said, adding that the comprehensive annual rehabilitation of these patients would be slowed. .
As neurologist Maja Trošt explained, Parkinson’s disease is a degenerative brain disease that progresses slowly, the cause of which is unknown. The main feature is the breakdown of dopamine neurons into a dense black substance. This appears in motor and non-motor symptoms such as tremors, muscle stiffness, slower movement and loss of balance, indigestion, insomnia and bladder problems. It mainly affects physical movement and slowly enables the patient to lead an independent life.
Most people get sick when they are around 60 years old. In many people the first signs appear earlier, but the disease is difficult to diagnose. Troštova, who heads the Center for Extramyramidal Diseases at the Ljubljana Neurological Clinic, said more patients want to get their specialization, not just those who come to the hospital. In fact, most treatments are performed in an outpatient setting and these patients do not receive group treatment.
Parkinson’s disease is treated by combining medications, therapies, and surgical treatment to relieve symptoms. The latter was described by neurologist Dejan Georgiev of the Medical Center at the University of Ljubljana: “In patients in the final stages, when medication does not help enough, in addition to pump treatment, we recommend neurosurgical treatment – deep brain stimulation.”
According to him, 15 to 20 surgeries have been performed each year in clinical practice in collaboration with neurosurgeons in recent years. However, according to his assessment, patients would need twice as much, some of whom have been waiting for the procedure for more than two years because there is no operating room at the Medical Center of the University of Ljubljana.